National Foundation for Facial Reconstruction | NYC Charities Donations | Facial Birth Defects
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Stories

Stories

Share Information, read our blog, learn about our amazing kids and connect with families facing similar challenges.

Stories

Fall Newsletter

Fall 2011 Newsletter Cover

For all the latest news and information about the NFFR and the Institute make sure to read our Fall 2011 newsletter. Highlights from this edition include the new home for the IRPS, cutting edge new… read more

Calvin’s Story

Picture of Calvin before surgery

When most newcomers are introduced to NFFR, the first thing they think of is a cleft lip or palate. Cleft palate is a condition in which the two plates of the skull that form the… read more

Nefertari’s Story

Nefertari

When Nefertari’s mom was having a routine sonogram, it was discovered that her daughter would be born with a cleft lip which is a large opening between the nose and the lip.  Nefertari’s mother immediately… read more

Bobby’s Story

Bobby

Bobby is a five-year-old boy who was born with Treacher Collins Syndrome, a rare and complex genetic condition that effects the development of various parts of the head and face. Treacher Collins usually includes slanting… read more

David’s Story

David C

In 2007, the NFFR was given a gift; The Cohen Family gave us permission to follow their son David’s surgical journey from start to finish.  They gave the NFFR unprecedented access into their day-to-day lives… read more

Abigail’s Story

Abigail

Abigail was born with a bilateral Cleft Lip and Palate.  Her dad shared with us that they learned of Abby’s clefting before she was born.  We rejected the doctor’s offer to terminate, and there began… read more

Wyatt’s Story

Christine and Wyatt

Wyatt was born with a Bilateral Cleft Lip & Palate.  Wyatt‘s mom shared with us that she came to the Institute as a new mother, very ignorant to the world of facial differences and very scared…. read more

Hannah’s Story

Hannah

On January 13, 2004,  Bari was born with “facial dysmorphic features” and choanal atresia (an airway blockage). She was in NICU for approximately 1 month and came home with a pulse oxymeter. She has had 2 surgeries… read more