Stories
Fall Newsletter
For all the latest news and information about the NFFR and the Institute make sure to read our Fall 2011 newsletter. Highlights from this edition include the new home for the IRPS, cutting edge new… read more
Calvin’s Story
When most newcomers are introduced to NFFR, the first thing they think of is a cleft lip or palate. Cleft palate is a condition in which the two plates of the skull that form the… read more
Nefertari’s Story
When Nefertari’s mom was having a routine sonogram, it was discovered that her daughter would be born with a cleft lip which is a large opening between the nose and the lip. Nefertari’s mother immediately… read more
Bobby’s Story
Bobby is a five-year-old boy who was born with Treacher Collins Syndrome, a rare and complex genetic condition that effects the development of various parts of the head and face. Treacher Collins usually includes slanting… read more
David’s Story
In 2007, the NFFR was given a gift; The Cohen Family gave us permission to follow their son David’s surgical journey from start to finish. They gave the NFFR unprecedented access into their day-to-day lives… read more
Abigail’s Story
Abigail was born with a bilateral Cleft Lip and Palate. Her dad shared with us that they learned of Abby’s clefting before she was born. We rejected the doctor’s offer to terminate, and there began… read more
Wyatt’s Story
Wyatt was born with a Bilateral Cleft Lip & Palate. Wyatt‘s mom shared with us that she came to the Institute as a new mother, very ignorant to the world of facial differences and very scared…. read more
Hannah’s Story
On January 13, 2004, Bari was born with “facial dysmorphic features” and choanal atresia (an airway blockage). She was in NICU for approximately 1 month and came home with a pulse oxymeter. She has had 2 surgeries… read more